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Blast from the Past

After a morning GI appointment, my mom wanted to get a coffee before she took me to work. We drove to a local coffee shop and I decided to go in with her to grab a tea. We placed our … Continue reading →

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Who is an advocate?

In honor of IBD Awareness Week, which wrapped up on Saturday, I thought I’d come back from my blogging hiatus and talk about what it means to be an advocate. Over Thanksgiving break, I had a revealing...

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Why?

Why? I ask myself this question as I cry at night. Why is my child sick?  Why has he been diagnosed with this disease?  Why so young? Why?    I ask his doctor this question at his appointment. Why does...

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Words Into Action

It was a Monday and I had a migraine. The hospital room was grey and muted.  I was on my side with my eyes closed, trying to wish away the headache. A suave, slicked-hair doctor – the new GI for …...

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Step up

I have been meaning to write this post for a while but the thought of sharing my voice felt a bit self-glorifying so I held back, until now.  I realize that I may not be the only one holding back, …...

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Some Time With My (Gutless) Friend

I had the pleasure of picking up a friend at the airport a few months ago. She had flown in, carefree and light on luggage (literally one 5 X 7 envelope contained everything she brought, including her...

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Introducing Jessi! Read her story.

In 1999, at my 2-month check-up my family learned I have Turner Syndrome. Before my 6th birthday I had ear tubes put in; tonsils and adenoids taken out; a tethered spinal cord released; my bladder and...

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Project WOW (Wear an Ostomy for the Weekend)

Project WOW (Wear an Ostomy for the Weekend) was created to help the ImproveCareNow Community learn more about what patients wearing ostomies go through on a daily basis. The Parent Working Group (PWG)...

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Life With Colitis: Mason’s Story

When I was first told I had colitis I was only 7 years old. I had really bad cramps and started pooping blood. We went to the doctor and he checked me out. They didn’t really know what was wrong …...

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World IBD Day 2016

Filed under: Life with IBD, Patients & Families Tagged: #worldIBDday, 2016, @ICNpatients, Awareness, Crohn's disease, IBD, Inflammatory Bowel Disease, invisible illness, outsmartIBD, PAC, patient...

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